Tis’ the Season :: Annual Chapter Christmas Party 2012

On December 1st, the Calgary Chapter of Muscular Dystrophy Canada hosted its Annual Christmas Party.  The Chapter had the pleasure of putting this party together for the clients and their families – thanks to the awesome help of all of our Chapter Executive.

We had our space packed with 15 families, consisting of 26 “Adults” and 20 “kids” who gathered together to kick of December with an excellent Christmas Party!

All those in attendance enjoyed a special visit from the jolly-old-man, Santa Claus!

As well as a fantastic gingerbread house decorating contest, followed by a DELICIOUS Turkey Dinner!

A HUGE Thank you must go out to Karyn Lee with Prairie Sky Images & Designwho graciously donated her time and skills to capture our party in photos.

You’ve seen a few of the pictures here – but you can view them all by checkout out our Album on our Facebook Page

And last but not least, we would like to say Thank you to Candisse McCormick for using her event planning skills and pulling off such a fantastic party.  Check out her company Envious Events & Marketing.

Meet Our 2012 Calgary Walk Ambassadors

The Ambassadors are a person or family who are committed to making the Walk for Muscular Dystrophy a success, and have gone above and beyond to promote and raise awareness of the Walk for Muscular Dystrophy in their community.

Meet Nevan and Ella!

 

Nevan, 6 and Ella,3 both have a rare form of Muscular Dystrophy classified as Merosin Deficient. Their struggle with this disease became apparent in the early months of their lives. While most children were meeting the exciting milestones of rolling, sitting, standing and taking their first steps, our children were still struggling to hold their heads up. Today, they can neither walk nor stand independently and their mobility is greatly restricted. Some of the potential realities of this disease are the use of feeding tubes, reliance on devices that assist breathing, insertion of spinal rods due to scoliosis and development of severe joint contractures .

Intense physiotherapy, stretching, massage, and assistance with all aspects of movement are all part of every day for Nevan and Ella. Muscle ability and therapeutic benefit are factored into the choice of every recreational activity they participate in. Despite these challenges, Nevan and Ella are happy, bright children who love life. Currently, Nevan is involved in therapeutic horseback riding, and both he and Ella participate in assisted swimming. Nevan has completed grade one and both he and his sister are learning to play the piano. Nevan is smart, creative, has a wonderful imagination and a kind heart. Ella is incredibly animated, funny, and already shows a sweet sense of empathy and compassion. As parents, we feel incredibly blessed everyday and are inspired by our children’s courage and undaunted spirit. They have brought a profound meaning to our lives and constantly remind us of the precious nature of life.
 
We dream of a future for Nevan and Ella that is bright with opportunity. Muscular Dystrophy Canada allows us this hope through the many roles that it plays. Muscular Dystrophy Canada is dedicated to research seeking ways to improve life quality and duration . It offers a community where Nevan and Ella can see and feel that they are not so different. And Muscular Dystrophy Canada’s generous equipment program helps to provide relief from the heavy financial burden of wheelchairs and other mobility devices that need to be updated regularly as children grow. Nevan and Ella have both benefitted from such equipment that has not only given them a great sense of mobility, but fosters their independence and allows them to play in simple games that they would otherwise only be spectators of.


On behalf of our family, we extend our deepest gratitude for supporting Muscular Dystrophy and in turn providing hope for children like Nevan and Ella.

-Jeremy, Kira, Nevan and Ella Dixon

 

Volunteers Needed!!

 

We are currently looking for some individuals that would be willing to donate some of their time for our Walk Day to help us with some of the tasks that need to be executed to make sure that our event runs as smoothly as possible.

Remember - many hands make light work!!

Here is a list of duties, and how many volunteers we’d like to have for each.

Volunteer Rolls

Walk Day – Requires

o  Set Up – x 6 people

o  Food Pick Up – x 2 people

o  Food Set Up and Organization – x 2 or 3 people  *set up, serve, keep area clean

o  Coffee Pick Up – x 1 person

o  Registration – x 3 or 4 people

o  CLEAN Up – x 6 people

After Walk Day

o  Thank You’s – X 1 or 2 people  *write and mail thank you cards to all sponsors and volunteers who helped on Walk Day.


If you are willing to help us out with one or more of these duties, please let us know by sending an email to candisse.m@gmail.com

 

There is just 26 days until the Calgary Walk for Muscular Dystrophy - Sponsored by Canada Safeway! Make sure you get yourself registered! By doing so you can help raise funds AND awareness for those living with neuromuscular disorders!
Visit this link to Register TODAY!!
http://muscle.akaraisin.com/Common/Event/Home.aspx?seid=5098&mid=8

There is just 26 days until the Calgary Walk for Muscular Dystrophy - Sponsored by Canada Safeway! Make sure you get yourself registered! By doing so you can help raise funds AND awareness for those living with neuromuscular disorders!

Visit this link to Register TODAY!!

http://muscle.akaraisin.com/Common/Event/Home.aspx?seid=5098&mid=8